Day 19

At 5:30 am, yes that’s all the sleep I got, I had a fever of 100. The whole day the fever hovered between 100.5 and 101. I t was a wasted day because I was mostly in bed either sleeping or with my eyes closed. I decided to take the equivalent of 625mg of Tylenol …

Day 18

Woke up at 6:30 am again. Still have a fever of 100.0. Ate breakfast at 8 am: toast, hot chocolate, orange juice. Same thing I’ve eaten everyday since  I got home.  After breakfast my fever went down to 99.4, then 99.1 at 9 am. It is now 11:30 am am and fever is back up to …

Day 17

I was awake for good at 6:30 am, but didn’t get out of bed until 8 am. I had a Doctor’s appt. at 10:20 and then I had another appt. at the hospital at 1pm to get my PICC line dressing changed. All day at the hospital it seems. We didn’t get home until 2:30 …

Day 16

Went to the hospital at 19 am for them to check on my blood numers. At 11:30 they informed me that I would not need platelets. I was so happy. My Platelets were 37,000, white 5.4 and red 3.5. Hemoglobin10.8. Came home at 1pm had 1/2 sandwich, fried pork rind and fried green planains and …

Day 15 I’m Home

After going to sleep before 11 pm,, I had weird dreams all night, but at 2 am, I woke up scratching and scratching. I was all covered in hives on my legs. Luckily my husband found some Benadryl 25 mg, and it helped tremendously. It took about a half hour, but it worked. Got up …

Day 14 Getting out of here

I slept until 7 am which was pretty good. I asked for my Platelets and they told me they were coming. I ate some oatmeal at about 8 am. They brought me my pills at 9 am,b ut no Platelets. You see, they have to asess you first and they were running quite late. The …

Day 13

Got 0.5mg of Ativan at midnight when they came in to get vital signs and draw labs. I slept off and on mostly on until 4:30 am. Then I took 25mg of Benadryl in preparation for yet more Platelets! They told me my Platelets were at 14,000. Of course with the temp taking and blood …

Day 12

At 5 am they came in to tell me to take 25 mg of Benadryl in order to get Platelets once again! I slept through most of it (blood pressure temperature taking) and it was over at 7:30. I finally got up at 8 am. Still no energy today. Physician’s assistant came in and told me …

Day 11

I’m supposed to use my mechanical breathing apparatus. I will try more to do that today. It is supposed to reduce getting fluid in the lungs. White blood cell count 0.6. Hemoglobulin 8.5. Neutrophills 275.  I barely ate breakfast. Once again no energy. I ate a small cheese sandwic and  ginger ale for lunch. Still no …

Day 10

Was too tired to do anything all day again. My white blood cell count was at 0.2. My hemoglobin was at 8.6. I had a fever all day about 99.7 average all day.  Got another Neupogin shot at 6 pm.  Ate some barbecue that my husband brought . Forced myself to take a very short …