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Day 39

Hello, I went to the Doctor for my weekly visit yestereday. Not good news, but I knew that. High M-spike, which means the transplant did little good. The problem is what to do now. Don’t Know. The Doctor suggested I get on a clinical trial somewhere so I can possibly take advantage of new drugs …

Day 31

Went to my Doctor’s appointment this morning. They tool a bunch of blood to test my Myeloma markers. Will find out next week. I also have to do the 24 hour urine collection. I had 2.7 white, which is low, 3.4 red, 70,000 platelets, and still holding 11.7 hemoglobin. My blood pressure was a little …

Day 30

I’ve been feeling OK for the past few days. On saturday my kids came over and we all watched the Soccer game. The U.S. lost, they are out of the world cup.  It was great, it was my birthday. They gave me the world’s most thoughtful birthday cards each one of them. My little one …

Day 26

Woke up after 7 hours sleeep.  I made bacon, eggs, bagel with cream cheese, orange juice, and hot tea.  The antibiotic that I am taking does not allow me to have milk or chocolate, so I have hot tea instead.  I cannot have aged cheese, soy sauce or lunchmeat.  Felt pretty good all day. Didn’t have …

Day 25

Went to my Doctor’s appointment at 9:20 am. I had asked the Doctor yesterday if I should go and he said yes. They asked why I was there and I felt like telling them to buzz off because there was no need for me to be there, but they do make money when I go, …

Day 24 Hospital then Out

I didn’t get punctured until after midnight. The nurse didn’t do it, some other person did. Then I was ready for the IV antibiotics, but the nurse was nowhere around. Finally at 12:45 he came.   It was a very slow drip so as not to blow my vein.    It lasted until almost 4 am. I slept through …

Day 23 – Still in the Hospital

Happy Father’s Day! Got to bed by 11:00 last night. At 12:15 they came for blood draw and vital signs. They also hung another bag of antibiotics. I went back to sleep. At 4:30 am the Tech came in for vital signs. I was so tired. I went back to sleep. At 7:30 am they …

Day 22 – Back to the hospital

Well at 2:30 am up to pee. At 4:30 am up to pee and diarrhea. At 8 am up to eat a big tasty breakfast of 2 eggs, bacon, toast with cream cheese, orange juice and hot chocolate. The kids (they are grown) and my husband were going to meet at a lake to go …

Day 21

Got to sleep until 6:45 am. I got ready to go to the Doctor and off we went.  I ate a sausage Mc Muffin and brought some hot chocolate from home for the ride. When the PA started asking about how I was doing, she found out about my fevers and I got a scolding …

Day 20

I got 8 hours of sleep! I woke up at 7:30 but I had a fever of 99.7. I was sweating. My husband is out of town, so I am alone. I can’t get rid of the fever. Finally I got out of bed at 8:30 and had a little breakfast. All day I have …